Correction

Adalia Rose Williams was 15 years old when she died from rare genetic illness. She gained a huge following on social media.

As a baby, Williams was diagnosed with Hutchinson-Gilford progeria syndrome – a rare and fatal genetic condition that rapidly increases the appearance of aging – but that didn’t stop the teen from sharing her life on social media and YouTube. 

An Instagram post by Adalia Rose Williams stated, “Adalia Rose was released from this life.” Although she entered it peacefully and then left, her life was anything but.

She left a lasting impression on everyone who knew her. “She touched millions of people, and made a huge impact on all those that loved her.” The post said that she is not in pain anymore and can now dance to the music she loves.” 

Williams shared YouTube videos that included makeup tutorials, dance routines, and even a tour of her apartment. She had 2.91million subscribers. The first video she posted was 9 years back and featured the song “Jesus Loves Me.”

The progeria, also known as “Benjamin Button”, is a disease that Brad Pitt portrays in the film “The Curious Case Of Benjamin Button”. According to the Mayo Clinic, babies born with progeria appear normal at birth then start to experience slow growth and hair loss in their first year.

An average lifespan for people with this condition is around 13 years. Some may even live to 20.

Adalia Rose and her family (L-R) Marcelo, Ryan, Emiliano, Natalia and Niko Pallante attend ipsy Gen Beauty at the Los Angeles Convention Center on March 25, 2018 in Los Angeles.

A cause to be joyfulA new gene editing tool promises to treat many genetic disorders

“The new heart still has the potential to be a rock star”:A gene-edited porc gives the man his first heart.

Youtubers shared their condolences via Instagram. Michael Costello, fashion designer, posted videos featuring Williams in the custom-made dress that he created for her. 

“My heart breaks. Last night at 7pm, Adalia Rose Wilkins was sent a message. Costello wrote, “I am overwhelmed and can’t stop crying.”

“Words cannot convey how much you’ve changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we’ve had together,” He concluded.

Ylianna, a friend of the family created a GoFundMe account to pay for funeral expenses and other medical costs. 

Follow Asha Gilbert @Coastalasha. Email: [email protected]



Source: USAToday.com

LEAVE A REPLY

Please enter your comment!
Please enter your name here