Adalia Rose Williams was 15 years old when she died from rare genetic illness. She gained a huge following on social media.

As a baby, Williams was diagnosed with Hutchinson-Gilford progeria syndrome – a rare and fatal genetic condition that rapidly increases the appearance of aging – but that didn’t stop the teen from sharing her life on social media and YouTube. 

On both her Instagram account and Facebook, Adalia Rose Williams shared a post that read: “Adalia rose Williams was freed from this world.” Although she entered it peacefully and then left, her life was anything but.

She left a lasting impression on everyone who knew her. “She touched millions of people, and made a huge impact on all those that loved her.” The post said that she is not in pain anymore and can now dance to the music she loves.” 

Williams shared YouTube videos with 2.91million subscribers and posted makeup tutorials, dance routines, and tours of her apartment. Her first video was posted 9 years ago, and she sang “Jesus Loves Me”.

The “Benjamin Button Disease” is another name for progeria. This was derived from “The Curious case of Benjamin Button”, where Brad Pitt played a character who grew up backwards. According to the Mayo Clinic, babies born with progeria appear normal at birth then start to experience slow growth and hair loss in their first year.

A person with this disease has a life expectancy of 13 years. However, some people may live as long as 20 years.

Adalia Rose and her family (L-R) Marcelo, Ryan, Emiliano, Natalia and Niko Pallante attend ipsy Gen Beauty at the Los Angeles Convention Center on March 25, 2018 in Los Angeles.

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Youtubers shared their condolences via Instagram. Michael Costello, fashion designer, posted videos featuring Williams wearing the dress he designed. 

“My heart breaks. At 7:15 last night I got a message that Adalia Rose Williams had been called home by God. Costello posted the caption, “I’m at a loss of words and I can’t stop crying.”

“Words cannot convey how much you’ve changed my life. I will miss you dearly, friend, and I promise to cherish all the wonderful memories we’ve had together,” He concluded.

Ylianna, a friend of the family created a GoFundMe account to pay for funeral expenses and other medical costs. 

Follow Asha Gilbert @Coastalasha. Email: [email protected]



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